Help Needed – Nova Scotia Lyme & Tick-Borne Diseases Association

In November of 2024 the Nova Scotia Lyme & Tick-Borne Diseases Association was officially formed. At that time we had a six member Board. Due to a variety of issues, such as moving out of the province and workloads, we have had three resignations. However, we have been fortunate to have three new people joining us. However, having gone through this we now realize that we need a larger Board so that we can maintain a quorum when some members are unable to attend. Therefore, we need YOU!

We have been meeting for an hour the first Thursday of the month at 7pm, via Zoom; however, we are in the process of trying to ascertain if this date/time is still working for everyone. Due to vacations and a limited Agenda we took July and August off.

Along with Board members, we also have a number of Lyme advocates that attend our meetings to keep them in the loop as they help with initiatives. We could also use more advocates.

We have no specific requirements to become a Board member other than you have to reside in Nova Scotia. We would love to include people from a number of stakeholder areas such as pharmacists, naturopaths, doctors, nurses, veterinarians (or people that work in that field), those that work in fields that are considered greater risk (Search & Rescue, NSPC line technicians, surveyors, and more), etc. Some knowledge of Lyme and tick-borne diseases would be helpful, but we can educate you in that regard.

Please reach out to me if you are interested in learning more about being on the Board OR if you would like to help out with advocacy efforts. We presently have someone building us a website but we need financial assistance for this to come to fruition so fundraising ideas are needed. As well, we will be commencing our awareness building initiatives for early next year very soon and could use help in this regard.

If you are unable to commit to time, perhaps you can commit to a donation OR helping to get the word out that we need financial assistance to get things moving forward. If you know of anyone that might be interested in helping us out financially, please feel free to connect us. Unfortunately, we cannot provide tax receipts at this time; however, depending upon the amount received, we may be able to arrange for one.

We are not asking for a lot of time or effort, just what you feel like you can give. We understand that everyone is busy, but Nova Scotia has one of the highest rates of Lyme in the country and other tick-borne diseases, like Anaplasmosis, are steadily increasing in the province.

We need to do more to help educate the general public and health care providers.

Interested? You can respond to this post or find me on Google.

Diagnosed Anaplasmosis Cases Are Rising

We have been hearing a lot more lately about Anaplasmosis and how it has increased significantly in Nova Scotia and other areas of Canada. With many doctors still unsure about Lyme, it’s time to chat a bit about Anaplasmosis as it is now reportable in Nova Scotia (and Canada), along with Babesiosis and Powassan virus.

Anaplasmosis is a disease caused by the bacteria A. phagocytophilum. These bacteria are spread to people by tick bites primarily from the blacklegged and western blacklegged ticks. Early signs and symptoms are usually mild or moderate and may include: nausea, vomiting, diarrhea, loss of appetite, fever, chills, severe headache, muscle aches. If treatment is delayed or if someone is immune compromised, Anaplasmosis can cause severe illness. Prompt treatment can reduce your risk of developing severe illness. Signs and symptoms of severe (late stage) illness can include: death, respiratory failure, bleeding problems, organ failure.

Although I know Anaplasmosis was found in dog ticks in Nova Scotia in 2017/2018, very few cases were reported in humans until recently. Researchers at Dalhousie University presented findings to the public at Lyme Disease Conferences in Halifax in both 2017 and 2018. Unfortunately we only have a link for the 2018 presentation – “Matthew Curry – Bacteria Prevalence of I. Scapularis and D. Variabilis in NS” –https://youtu.be/RDVE3C4QAIA?si=jmzV2CYfGkRUUBuW. Interesting to watch as it also mentions other things found in ticks that might be causing issues in this province.

This article is from November, 2019 and is mostly regarding Anaplasmosis in animals, although it touches on humans – https://www.saltwire.com/nova-scotia/news/anaplasmosis-tick-borne-disease-showing-up-in-nova-scotia-382205/. Animals have been diagnosed with Anaplasmosis for awhile now in the province. “The first confirmed case of Anaplasmosis in a horse occurred in 2009 – “https://novascotia.ca/dhw/cdpc/documents/Tick-Borne-Disease-Response-Plan.pdf‘. Perhaps there have been cases in humans for awhile as well, but we were not looking for it because of lack of knowledge.

Just like Lyme, Anaplasmosis cases must fit certain criteria before being recorded as an official case – https://www.canada.ca/en/public-health/services/diseases/anaplasmosis/health-professionals/national-case-definition.html. Just like Lyme, recorded cases are no doubt considerably less than actual cases, especially as knowledge is limited regarding the disease.

The following is helpful info for NS health care practitioners from Dr. Jennifer Cram, Provincial Medical Officer of Health, NS Health and Wellness- https://physicians.nshealth.ca/sites/default/files/2024-07/OCMOH%20Memo%20-%20Tick%20Borne%20Diseases%20Program%20Update%2020230724%20Final.pdf. I have been frequently told over the years that although doctors are provided with information on Lyme and tick-borne diseases, they may not be reading it, so take this with you to your doctor, just in case.

It is important to remember the ticks can carry a number of pathogens at one time, or separate from Lyme. Some can be transmitted very quickly so prevention, or prompt and correct removal, is key. Some helpful information in this regard:

Do daily tick checks!